There is nothing that can prepare you for the moment you hear the words, “Your child has a brain tumor called Diffuse Midline Glioma, or DIPG. It’s highly aggressive, difficult to treat, and incurable. I’m so sorry, but your child only has 6-12 months to live and there’s not much we can do; go home and make memories.”
Your mind instantly starts racing as you fight with the emotions that come raging in. How is this possible? What are we going to do?
We want you to know that you are not alone on your journey. Every emotion you are experiencing is the right one, and every decision you make for your child and your family as you navigate this unimaginable road is the right one.
As a family who has walked a mile in your shoes, we would like to offer a few resources to help you:
